Tuesday 11 July 2017

Ehlers Danlos Syndrome (hypermobility) - Hip Displacement

Well, today has been a miserable day. The pain I have with my hips dislocating is through the roof.  I can't even sleep without it occupying my dreams and when I finally do wake up, I can't move for ages as I'm paralysed with the pain.

So it goes without saying, I have had better days! I called the doctor and he's prescribed more pain relief, and physiotherapy.  He said I may realistically have to consider the possibility of wearing a brace.

So. what do I do on bad days like this? I try to count my blessings and remember I'm not alone; I have fabulous support from family and friends. Also, the type of EDS I have is complicated because it affects almost all of my body, including organs, skin etc etc but its not generally life-threatening.

I try to quieten my mind, relax and keep focusing on everything good in my life.

Take care everyone.  No matter how hard things are, somebody loves you, and there's always a way forward; even if (like me) you have an incurable and progressive disease.

When you have some beauty in your life, nothing is insurmountable.

Now, look at this gorgeous boy and smile. :)


Tuesday 2 May 2017

ProHydrate Internal Hydrating Gel Review


Fantastic Vagisil Campain by The Insiders UK


I had a full hysterectomy when I was 27 years old (now 42). I thought it would be nice to try something that may make my vagina feel more like my age. I've noticed lately that It feels older during intercourse! (Poor thing!) So I was excited to try this new product from Vagisil. We care about our skin everywhere with 1 exception it seems.

I'm ready to talk candidly. It is the 21st century. It might alay fears of feeling "different" or "abnormal by talking more on intimate health. It may even save lives if women feel this is no longer taboo. My friends will share frank & honest opinions about the products later on.

This product comes in a handy little applicator. The gel is inside a small tube with a long-ish spout. To insert, break the cap off the end, lubricate the tip by letting a little bit of the formula out, slip the spout in gently and squeeze the tube so the entire contents go up inside your vagina. I thought the gel might slip out the moment it went in. (If you have sex without a condom, you will know what I mean, right? But I hope we all practice safe sex by now!) However, I was pleasantly surprised, it seemed to stay put & I didn't notice discharge afterwards. I have quite sensitive skin, so naturally I was a bit worried about using a treatment that would stay there probably longer than external gel. However, I've had no side effects. I've had intercourse after 4 applications & it really does feel different! I felt more silky inside, & the annoying mild irritation I have on the outside appears less angry. I don't suffer too much with natural lube but I feels softer too. It now feels reassuring to apply after my daily shower routine & only takes moments. The only thing that put me off was it's quite expensive at £11.99 (6 tubes). They say to use it every 3 days. (18 days per box.)

So here's what Vagisil say about it:

"...Now Vagisil ProHydrate Internal Hydrating Gel relieves vaginal dryness so you can enjoy your intimate life at any moment.

The unique bio-adherent formula coats the vaginal wall and slowly releases moisture over time to relieve vaginal dryness so you can feel comfortable & ready whenever the moment is right.

Contains ProHydrate Complex a unique blend of moisturisers including Hyaluronic Acid which feels like your own natural moisture.

The single-use pre-filled applicator inserts effortlessly and targets the source of dryness."

Please share your experiences & questions using #InsidersUKVagisil #TheInsidersUK @TheInsidersUK

Vagisil ProHydrate external gel gets my Vagina's Approval!



Fantastic Vagisil campaign by The Insiders


I had a full hysterectomy when I was 27 years old (now 42). I thought it would be nice to try something that may make my vagina feel more like my age. I've noticed lately that It feels older and I have patches of dry, sore, sensitive and itchy skin around the outer labia. (Poor thing!) So I was excited to try this new product from Vagisil. We care about our skin everywhere with 1 exception it seems.

I'm ready to talk candidly. It is the 21st century, right!? It might alay fears of feeling "different" or "abnormal" by talking more about intimate health with each other. It may even save lives if women feel this is no longer taboo.

My product came in a tube of 30g and costs £8.49 @ Superdrug as of 26th April 2017.

I have quite sensitive skin, so naturally I was a bit worried about using a new treatment.  However, I've had no side effects since first application 7 days ago.

I am really happy with the results! My vagina literally looks and feels happier too! Bless it!

Years of discomfort have been banished and my skin really does feel silkier & smoother. The annoying mild irritation I have on my outside labia appears less angry, I don't itch like I used to. It really feels like Vagisil is putting back some of my natural goodness that I wash away when showering. I also feel fresher. The gel doesn't smell of strong perfume - I just feel cleaner somehow.

I am lucky to be blessed with natural lube but I am converted even without needing that benefit too much; regardless of it being Vagisil's main sales pitch.

Vagisil ProHydrate Internal Gel has become a seamless part of my moisturising routine after my daily shower.

For women who have internal dryness that impedes their sexual pleasure, I'd  really recommend she compliments this with Vagisil ProHydrate Internal gel too. It just depends on how much you feel your intimacy is affected by vaginal dryness. But please don't suffer alone! Talk about it, let's lose the taboo. After all, everyone lady has one. They vary in shapes and sizes as much as the rest of our body. We can make ours the best it can be. Show yours some love. ❤️

So here's the Vagisil science:

"...Contains ProHydrate Complex – a unique blend of moisturisers including Hyaluronic Acid which feels like your own natural moisture.

Progressive use can actually make your intimate skin feel healthier.

Formulated without added estrogens or parabens.

Please share your experiences & questions using #InsidersUKVagisil #TheInsidersUK @TheInsidersUK

Monday 10 April 2017

Hisense H43M3000 43" Smart 4K Ultra HD TV Review

This is a great TV that comes packed with extras and is extremely good value for money compared to its competition. You can take advantage of both Freeview HD & Freeview Play for catch-up TV. 

Wuaki & Netflix is ready to sign-in amongst other handy apps. 

It handles gaming consoles with unexpected depth and sharpness. The upscaling is quite successful. rich colours.

You have heaps of connectivity with built in wifi, 4 HDMI outputs, 3 USB's, LNB, Scart, HDMI Arc, Ethernet, aerial and much more. It's upscaling is good quality & sound is surprisingly robust even without a sound bar. Looks just as good as any other on the market and belies it's current market price at £379 (AO on 8th April 2017). 

Hisense may be known more for its fridge-freezers than 4K smart TV's but it's certain to make an impact.




Wednesday 15 June 2016

Edge Beanbags - TechBed



So I'm a little bit devastated that the Ehlers-Danlos Syndrome is now affecting the use of my hands. I'm so worried I won't be able to do my art again. Even holding this phone and playing competitions on Twitter is getting more difficult as I struggle with lack of dexterity. 

But!!! One of the coolest things I've won which is certain to help me through this is an awesome TechBed from a dedicated company called Edge Beanbags. You can also find them on Twitter @edgebeanbags where they do regular giveaways. 


In their words:

The Techbed is a genius stand, cushion, pillow, call it what you will, for all iPads, Tablets, the Samsung Galaxy and all e-book readers as well as the good old-fashioned book.
The Techbed is great for people with arthritis, an RSI or suffer with sore fingers, thumbs or wrists as a result of holding an iPad, Kindle or book for any length of time.
Use your Techbed for:
    • Internet surfing
    • Skyping
    • Facetiming
    • Movie watching
    • Reading
    • Gaming
    • In fact anything that you want to use your tablet device for.

Tuesday 14 June 2016

Another challenge with Ehlers-Danlos Syndrome (sigh)

Ehlers-Danlos Syndrome is such a complicated condition as it potentially affects all the soft tissues in the body. This includes muscle, tendons, joints, organs, skin, eyes, ears, mouth, nose, veins, arteries etc etc. All of this amounts to 90% of the body so it's not surprising that people who suffer from this condition may have dozens of secondary conditions as a result.

I have so far been diagnosed with costochondritis, arthritis, hypothyroidism, hypertension, endometriosis, inflammatory bowel disease (crohns or colitis) recurrent infections; just to name a few!

I suffer from chronic pain in so many parts of my body, it's made day-to-day activities almost impossible. Depending on what day I am having, I can be totally helpless and need my carer with me at all times instead of several times a day.

I generally keep positive but it just seems my list gets longer and longer so today I'm off to the doctors as the pain, discomfort, numbness and lack of dexterity in my hands (mainly my right hand) is becoming a complete hindrance. Also, I don't feel right - my head feels full of cotton wool, I'm dizzy and I just checked my bp on a home kit and it says it's 110/97. Naturally, if this is accurate it needs to be checked. Here is a little video showing how my fingers bend incorrectly.

I'll be back later with an update and hopefully, a solution to share. :)



For more information on Ehlers-Danlos Syndrome click here

Disabled Cumbrian woman falls victim to £2,000 online van scam | News & Star

Disabled Cumbrian woman falls victim to £2,000 online van scam | News & Star